I Cant Sleep in the Waiting Room
So today officially marks the two week mark of being here at the children’s hospital. Short recap for the past two weeks. Monday we were admitted due to lack of food consumption and weight gain for my baby daughter. It was brought to our attention that she would need a feeding tube for a while to see if she gains any weight. Since she was diagnosed with Ventricular Septal Defect it is key for her to gain weight, but she didn’t even with the feeding tube. This past Tuesday she had surgery. Pulmonary Artery Banding is the procedure she had done. Everything so far seems to be going good. No complications. That’s that.
Back on topic. Why the hell am I not allowed to sleep in the waiting room? Plus I get stuck with parents who snore like bears. FAIL SLEEP.
I know all about kids and CHD’s. My son was diagnosed in Utero with Heart Block. Recieved a pacemake 24 hours after he was born. Rediagnosed with Long Q.T Syndrome and required a heart transplant. He received his second chance at St Louis Childrens Hospital on June 17th 2007. Having kids is a gift.. Regardless of how old you are when you become a parent! I had my daughter at 19. 10 years later I had my son.. Having a special needs child forces us to grow up 10 times faster. I was almost 30 when I had him.. Thought I was already a grown up.. Boy was I wrong.. You are never grown up until you are put in our shoes.. Having these kids puts everything in perspective.. dont you think?